Tag Archives: cancer

New Lessons From My Hometown

Posted on by under Guest, Learning & Place

I grew up in Claremont California, a town often called the “City of Trees and Ph.D.s” for its well-known colleges and graduate schools and the matching tree species that lined the streets, including my favorite, the periwinkle-blossomed Jacaranda.

After high school, I moved to the east coast for college and graduate school, on campuses with buildings and foliage reminiscent of my hometown. Eventually I landed in Williamsburg, Virginia, pursuing my editing career and training to teach yoga classes on the side. Ten years on, I was a married mother of a twelve-month-old baby boy. I was settled in my career and the very best nest, but in spring 2011, something out of my control lured me back to my lifelong friends in Claremont. I had always known the town was filled with academe, but my recent leukemia diagnosis soon opened my eyes to a different type of learning: I needed to learn the real meaning of kindness.

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image (1)One day about a year after my diagnosis, when I was feeling tight and uncomfortable in my own body from the lingering side effects of treatments, I wandered into Mint Leaf Thai Massage near Claremont’s railroad depot. I asked the lovely woman at the front-desk for a gentle massage. The petite Thai woman, my mother’s age, stood up and beckoned me to her massage room. When I pointed out the port protruding under my collarbone beneath my skin, she knew all about the tough road of chemotherapy because she had gone through breast cancer. She gave gentle, thoughtful massages that would lengthen my tight muscles. After several monthly visits, she insisted I come to her twice a month. When I explained I did not have the budget for so many massages, she offered to give me free massages until I felt better. And she did. Her kindness gave me a safe place to face my changed body after enduring chemotherapy, radiation, and a stem-cell transplant. Often, I would be crying with relief by the end of a session, thanking her for her caring touch.

I began taking classes at Claremont Yoga in summer 2012. Out of shape and with “chemo brain,” I quietly introduced myself to each teacher, explaining my circumstances. The teachers took me under their collective wing, adapting and accommodating poses I could not do because of my port or lack of flexibility or stamina. Other students in classes came to know me, my son, and at least some of my leukemia journey. At Claremont Yoga, where the teachers and students support me with encouraging words, I’ve been able to laugh at moments when I blank on a pose or name. From my hometown yoga community, I’ve come to embrace the light, joy, and kindness that yoga has brought to my life.

unnamedDown the street from Claremont Yoga in the Village is a store full of singing bowls, fountains, incense, gongs, flags, books, figurines, and all types of jewelry. Called Buddhamouse Emporium, the shop intrigued me. At first I would visit for heat relief in the form of air conditioning. Soon, I came to know shop owner Charlotte. During our wide-ranging conversations surrounded by art on the walls by local artists, she and I would talk of gratitude and generosity. She encouraged me to put together strands of what I called Pranayama Beads, with each string of beads following a breath pattern. I showed her several, and she liked them so much she wanted to sell them in her shop. It was a creative endeavor that I never would have pursued without Charlotte’s friendship.

In summer 2013, I followed another passion all the way to a writers’ workshop. Filled with creative people as enamored of the written word as I am, these folks have helped unlock my creative writing juices. Though I had written short professional pieces before, I had never followed my writing passion on a more personal level. In the workshop, I shared essays about the harrowing first year of my leukemia journey with the group. Members gave not only constructive criticism but also encouraging words, hugs, and chocolate. Their feedback on my work always left me feeling strong and courageous about my writing life. For the cost of admission—photocopies and a dollar or two donation per session—I’ve been buoyed by a camaraderie I had missed from my publishing days.

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Today, I’m a die-hard Claremonter. My son and I visit with longtime gal pals and their families. I am teaching in a limited capacity at Claremont Yoga. And next month, I will give a reading from my newly self-published book at Buddhamouse.

I’m also embracing a whole new community of intellectually engaged parents at the elementary school where my son just started kindergarten. Like my son, who is progressing from a toddling preschooler to a more independent youngster, I am moving beyond my cancer identity, transforming into something better and kinder. Just as this village will help raise up my son, I’ve learned that it takes a village to heal a person physically and spiritually. I’m grateful to all who have taught and loved me along the way.

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image“New Lessons From My Hometown” is by Erin Michaela Sweeney. In February 2011, Erin was diagnosed with ALL (Acute Lymphoblastic Leukemia), a rare and aggressive blood cancer. This story is an adapted excerpt from her self-published memoir: Every Breath Is a Gift: Reflections on My Leukemia Journey, which she is releasing in September to coincide with National Leukemia and Lymphoma Awareness month. Erin is now a writer, mommy, yogini, daughter, editor, sister, and napper extraordinaire who lives in Claremont, California. For more information about her memoir, visit www.ErinMichaelaSweeney.com .

Photo credits: Welcome to Claremont courtesy of the Southern California Violin Makers Workshop; Pranayama Beads and author profile image, courtesy of the author.

A Still Life

Posted on by under Creating Place

A small antique dining table, repurposed as my writing table, sits by a large window in the breakfast room. The cherry wood has a smooth rich patina ripened by age and signed by watermarks from a continual parade of tea cups, coffee mugs, flower pots, and leaky bud vases.

Out the window, the arborvitae along the fence line sway in the breeze like a happy gospel choir. Sunlight from the east plays with leaves hanging on high branches; light darts in and out between the green like a hummingbird searching for nectar.

The sudden appearance of a chipmunk perched on the head of my garden statue—the sculpture of a little boy sitting cross-legged with a rabbit in his lap—startles me. I gasp. The chipmunk’s bushy tale drapes down the side of the little boy’s head like a furry hat. The animal blends into the concrete. A still life.FullSizeRender(20)

Cardinals, sparrows, and house finches engage in a noisy flurry at the birdfeeder. With an abrupt turn of his head, the chipmunk pauses, perks up like a meerkat, and scampers into the low-lying shrubbery.

A male cardinal, proud and red, with a wisp of red plumage atop his head, wins the battle for position at the feeder. His female counterpart is thin, grayish, and pale. He—I named him D’Artagnan after the most valiant of Dumas’ characters in The Three Musketeers—pecks at the safflower seed in the hanging wire silo, captures a seed in his mouth, cracks it with his sturdy beak and passes it to his lady, like a lover giving a gentle kiss to his beloved.

With a swoosh, Mae West, a round-breasted mourning dove, alights on top of the feeder, causing it to sway as she sashays about with her full bustle. Because of their size, the doves hold the keys to the coffer of seeds. They make merry and dine and grow bloated with time. There are no leftovers. Not one crackle.

*****

In early 2013, I was diagnosed with cancer. My world went still, folding in on itself like useless bellows.

The chemotherapy I received was a benevolent poison; while killing the unhealthy cells, it attacked healthy cells, also, resulting in extreme fatigue, an inability to concentrate, and a weakened immune system.

Words became hazy on the page of a book; it was hard to read a whole paragraph and understand it. The computer screen’s light altered my vision; tears salted my cheeks. It was as if someone had stuck me in a tightly bound book, slammed it shut, and shelved it.

My husband installed birdfeeders in our backyard outside the breakfast room window. He stocked them with thistle seed and safflower.

I watched and waited.

Every morning, I crept toward the kitchen, grimacing when the old wood floors creaked, hoping not to scare away my first visitor. A study in red—D’Artagnan—was perched at the feeder one morning as I tiptoed around the corner from the den.FullSizeRender(23)

On subsequent mornings, brilliant goldfinches, chickadees, tufted titmice, and doves arrived. The rare appearance of indigo buntings and a rose-breasted grosbeak—his chest splashed with red like blood from a dagger wound—pulled me from my chair. Adam must have felt the weight of words when God said: Name them. 

I sat down. With a shaky hand, I scrawled fragments of sentences in my journal.

*****

A small young dove slow-steps along the brick window sill. As I rest my elbows on the table, its old joints creak. The bird stops, turns his slick gumball head, considers me with his black bead of an eye, and with his slender beak commences a gentle tapping on the glass. Tap. Tap. Tap.

He is not looking at me, but at his own reflection wrought by the play of light on the glass making a mirror image of himself. His kinfolk arrive and with a whistling of his wings, he shoots away to the trees.

My blank computer screen stares at me. My journal is open beside me on the table. I begin to type: In early 2013, I was diagnosed with cancer….

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 Images by Lisa Taylor Phillips

The Mourning House

Posted on by under Guest, Out of Place

I currently sleep in the guest room of my house. The other room I used to sleep in—which I have been calling the “hospice room”—is now a more hallowed space. That room was redesigned just prior to death of the woman who had accompanied me through life and parenting for 27 years. We’d only been married for just over six months, due to a five-hour period during which same-sex couples were allowed to marry in Michigan. The death was unanticipated; diagnosis of advanced breast cancer, just one year earlier, had led us to believe we had “years” instead of a year to share our lives together. Once a partner, spouse, and co-parent of two daughters, I must now try on the identity of widow, while existing inside of a house that no longer feels like home.

In the hospice room, the hospital bed is gone, but there are many artifacts put in place for healing purposes. A Buddha statue from Sri Lanka donated by sister for good luck; framed photos of orchids taken by our daughter when we went to the orchid show last year; a print of the magnificent sand hill cranes whose visits to the wetlands of Michigan we witnessed every October.

When I walk through that room I see not the space where my partner and I once slept together, did our nightly roundup of the days events, and watched our favorite television shows. Once I had listened to Nancy whisper “sleep with angels, darlin’” each night before we switched off the lights. Now, I see a kind of vacuous shrine that I don’t wish to disturb.

The hospice room is artful. Our antique mahogany bed is spread with a treasured cover from Nepal, and its geometric purple and green hues are echoed in the pillows and in the lilac paint on the walls. Nancy has left many objects containing memorabilia—cigar boxes, a pewter bowl, an old candy tin. When I am brave enough to look through them, I find weathered photos of her father and grandparents in sepia, small jewelry boxes containing antique rings and pearls, the invitation to her parents’ wedding in 1950, the baby shoes of our daughters. It contains remnants of a life I once was part of.

In the guest room where I sleep, I still feel like a visitor. The room remains the same as when it housed guests, not particularly inviting and disturbingly impersonal. The colors clash: pink curtains, a blue patterned quilt, walls painted a jolting lime green. A large unadorned bed dominates the smallish room. It’s not designed for comfort or charm. But in my current uncomfortable frame of mind, it seems to fit my requirements.

A perennial basket of unfolded laundry resides in the corner of the anonymous space where I now reside. My computer, my refuge, stands ready for my use, although I still can’t find a show I want to watch or a book I want to read. Scanning Facebook, reading through emails, I seek connections to fill the stillness that stretches before me.

The rest of the house is also still alien territory, transformed by the permanent vacancy of one of its occupants. My sprightly teenaged daughter, whose easy laughter hasn’t changed much since toddlerhood, begs me to go upstairs with her at night. She will not go back downstairs again without me, spooked by a house that is devoid of her other mother. She asks me to accompany her to the bathroom at night and in the early dark mornings. She fears that Nancy is somehow here in the house as a ghost, but perhaps not as much as she fears living in a house where Nancy no longer exists.

Nancy’s mother says she cannot bear to visit us in this place, not while the painful memories of her daughter seem to bounce off every surface of the house. But my daughter and I must live in this mourning house, trying to find our way to another kind of home where we can co-exist with what is here and what is not.

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JuliaGrant“The Mourning House” was written by Julia Grant. Julia lives, writes, and works in higher education in East Lansing, Michigan. She and her partner, Nancy, were one of the 300+ same-sex couples who were married on March 23, 2014, in Michigan.